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What is it like to live with ME/CFS or Long COVID?

Imagine if something as simple as taking a shower made you feel like you'd run a marathon... with a sack of rocks tied to your back.

This means that you may not be able to carry out or maintain your normal mahi (work) or activities at wākāinga (home) or kura (school). You may want to do things, but feel like your body just can’t function in the way it used to, or the way you want it to.

Our Stories

These poems and video interviews highlight the lived experience of people with ME/CFS and Long COVID and the normal lives these people give up, that others may take for granted.


They offer insights into symptom management options, talk about the services that ME Support delivers and provide messages of hope.

We aim to raise awareness of the debilitating nature of these conditions and provide insights and personal experiences of those also battling these illnesses. 


Can you help?

ME Support is funded entirely by grants and donations.

By donating you will be helping to provide valuable services that are not readily available through the public health system.

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