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Privacy Policy

Learn more about our privacy policy - what information may be collected from you, how such information will be used by us and/or other persons or entities, with whom such information may be shared, your choices regarding the collection, use and distribution of such information etc.

ME/CFS Support (Auckland) Inc (referred to in this privacy policy as "we", "our" or "us") is committed to safeguarding the privacy of individuals who visit the website (Website). We understand that personal information should be kept private.

The purpose of this privacy policy (Privacy Policy) is to inform you as to what information may be collected from you, how such information will be used by us and/or other persons or entities, with whom such information may be shared, your choices regarding the collection, use and distribution of such information, your ability to access or correct such information and the security procedures that we have implemented to protect your privacy.

By using or accessing the Website and/or any of our services (whether by your mobile phone, tablet, smartphone, PC or any other means), you are deemed to have agreed to be bound by this Privacy Policy.

What personal information do we collect and why? We may collect personal information about you (such as your first and last name, mailing address, telephone number, e-mail address, credit card number), directly from you, when you use the Website, over the phone, by letter or email. We will only use and disclose your personal information for the purposes for which it was collected (or otherwise as required or authorised by law). This may include using your personal information for the following purposes: - to provide you with products or services and to personalise your experience when browsing the Website; - to undertake customer service activities, such as responding to any queries, comments or complaints you may have; - to administer the Website services, including processing any searches or requests for information about our products or services; - to maintain and develop our business systems, including testing and upgrading them; - to enable us to monitor, review and improve our products and services and communicate with you about them; - for our administrative purposes and for internal record keeping; - to comply with relevant laws and regulations; and - for any other specific purpose which we notify you of at the time your personal information is collected.

Do we share or disclose personal information? For the purposes we have described, we may disclose your personal information: - to our suppliers (including service and content providers), contractors, dealers, agents, and business partners who help us administer the Website and/or deliver services and/or products to you; - to our professional advisers; - to anyone to whom our assets or business (or any part of it) is transferred; - where you have otherwise consented; or - as otherwise required or authorised by law. We may also disclose your personal information to anyone who hosts or maintains data centres, service platforms and other infrastructure and systems on behalf of us, where your personal information is processed and/or is stored. We will take reasonable steps to ensure that the persons and organisations to whom we disclose personal information are bound to protect the privacy of that personal information. Please note that some of the persons to whom we disclose personal information may be situated outside New Zealand. Our Website and systems may also be based on servers located outside of New Zealand. If you have shared your information to us regarding any personal stories of ME/CFS or Long COVID, we will only share these stories (via avenues such as in newsletters or on the Website) with your express written permission.

How do we protect your personal information? We take reasonable measures to ensure the security of your personal information that is held by us from such risks as loss, misuse, unauthorised access, disclosure, alteration and destruction. We remind you, however, that if you send information to our Website, the Internet is not a secure environment and although all reasonable care is taken, we cannot warrant or guarantee the security of information you provide to us via electronic means.

How can you access and correct your personal information? If you identify any inaccuracy in your personal information, or you need to make a change to or would like to verify such information, please contact us so that we may update our records or you may go online to the Website and update your own information. Our contact information is set out below. Where you request details of your personal information and the information requested is not readily retrievable, we may charge a reasonable fee for the cost of accessing or retrieving that information. We note that we are not required to provide access to information in certain situations, but if we refuse access, we will give you our reasons for doing so.

For how long do we hold personal information? We will keep your personal information for only as long as is necessary to achieve the purpose for which we collected it.

Changes to this Privacy Policy We may modify this Privacy Policy from time to time and if we do so, we will post any updated Privacy Policy on the Webiste. We encourage you to check the Website periodically to ensure that you are aware of the terms of our current Privacy Policy.

Questions or Comments

If you have questions or comments about this Privacy Policy, or you wish to access or make changes to your personal information, please contact us at

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