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Useful Resources

ME/CFS Resources

NZ DOCTOR:
How to treat ME/CFS

This article published in the New Zealand Doctor publication in 2020 encourages general practitioners and other medical professionals to learn and understand more about ME/CFS.

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Pacing and Management Guide for ME/CFS

This resource developed by ME Action explains the basics of the management technique Pacing, and is a great starting point for beginning your Pacing programme.

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Jennifer Brea - TED Talk

What happens when you have a disease doctors can't diagnose?

Jennifer Brea gives an informative and emotional talk about her journey with ME/CFS. You may recognise her from the Netflix film Unrest (2017).

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Advice for People with ME/CFS Anticipating Anaesthesia or Surgery

This information collated by the Hunter-Hopkins Center gives advice for both patients and their medical professionals for those needing surgery under a general anesthetic.

What are MECFS Symptoms (CDC)

This document outlines the three primary symptoms of ME/CFS, as well as a number of other commonly occurring symptoms.

This presentation outlines what we know and don’t know about ME/CFS, the diagnostic process and ongoing support needs, as well as links to resources for patients and family of those with ME/CFS. Watching this presentation also contributes to GPs annual CME.

Presented by Dr Cathy Stephenson

Diagnosis and Management of ME/CFS (ME Action)

This document gives a great overview of ME/CFS, the common symptoms, and some information about management techniques, including Pacing.

Life with ME/CFS

Richie Barnett discusses his journey and what it is like to live with ME/CFS. Richie captained the Aotearoa New Zealand Rugby League team in the 2000 World Cup, after which he retired due to ME/CFS.

Rugby League Captain Richie Barnett

ME/CFS Research and COVID-19

Professor Warren Tate spoke at the ME/CFS Support (Auckland) AGM in 2021. This presentation covers some of his updated research, the relationship between ME/CFS and Long COVID, as well as contributions to the research around ME/CFS internationally.

Professor Warren Tate

Long COVID Resources

Managing Post-COVID-19 Symptoms

The Royal Australian College of General Practitioners has developed this guide for those self-managing their Long COVID symptoms. It contains advice on managing fatigue, respiratory symptoms, and returning gradually to activity.

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Support for Rehabilitation

This booklet provides support and advice for those experiencing symptoms of Long COVID. Developed by the Auckland District Health Boards, this resource contains advice on self-management of a number of symptoms as well as resources to use for tracking ongoing symptoms.

Self-management for COVID-19-Related Illness

How to (and how not to) tackle New Zealand’s Long-COVID threat

Opinion Article by Patrick Hadfield, President, ME Auckland, Published on RNZ website 12 May 2022

Impacts of COVID-19 in Aotearoa

This contains an executive summary for Long COVID in the Executive Summary Document, then a full chapter on Long COVID in the main report (starting on Page 114).

Executive Summaries of Report for Manatū Hauora | Ministry of Health January 2023 - Health Services Research Centre, Victoria University of Wellington